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My GBS Story

Guillain Barre Syndrome Recovery Working Hard – Walked 180 Feet With Walker

Well each day I continue to keep working hard on my recovery from Guillain Barre Syndrome. I continue to work out my legs on the SciFit bike, practicing standing up at the wall bars and more walking each day with walker. Today I walked 180 feet in the walker, that’s all the time allowed for, or my physiotherapy session. I feel stronger and I could have done the complete loop around the whole gym if I had more time.

Jamie Boyle Walking GBS Recovery Day 266 Guillain Barre Syndrome

Improving Week to Week

When I first went in the walker, I only walked maybe 30-40 feet. Each time I walked, I walked a little further. Now today I walked 180 feet!! I’m improving, it’s taken me a while to get here but I did. I walk a couple times in the parallel bars first to warm up my legs then I walk in the gym where the black lines are and out the gym door on the right. I walked all the way down to the cafeteria today. We’ll see how far I go tomorrow.

My discharge date is still set for May 15th after their weekly conference meetings today on patients. I also only have a few weeks left here maybe at the Stan Cassidy Rehabilitation Centre in Fredericton NB. I hope that within the next few weeks I’ll be able to stand up on my own from the wheelchair up to a walker. Most importantly I need to be at this phase of my recovery by the time I leave here.

I know my recovery will continue after I leave but I need to be at this point. This is and always has been one of my main goals here. I hope I can do it. I worked so hard to get to where I am today I don’t want set backs in recovery as mentioned before with no outpatient services being offered at home due to Covid-19. If I can stand, walk, I will be able to continue at home. I just need to get to this point.

I’m so close to my goal and I’m so close to maybe going home soon. I just got to finish what I started. If it wasn’t for all the staff here at The Stan Cassidy Rehabilitation Centre I wouldn’t be where I am today. Now I feel I’m on the home stretch and hopefully my strength and abilities will also continue to increase. Furthermore it’s now or never!! I choose now!!! Looking forward to the next 2 weeks.

1 reply on “Guillain Barre Syndrome Recovery Working Hard – Walked 180 Feet With Walker”

You’re a real inspiration. You work so hard, and you’ve come so far! Keep fighting, and if you’re ever feeling low, remember how people you’ve never even met have seen your story and are cheering for you!

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