Well today is Day 242 of my recovery from Guillain Barre Syndrome GBS. It’s been a long road to recovery but I’m making progress so that’s good! It’s hard to imagine that it’s been 242 days now since I went into the George L. Dumont Hospital in Moncton on August 1st, 2019 and was diagnosed with Guillain Barre Syndrome GBS days later. Many factors influence recovery from GBS but for most people it usually takes 6 months to 12 months to recover. For me it’s looking like it’s going to be a full year for me before I get better from Guillain Barre.
As you know I am now out of the parallel bars and I’m now walking in the SteadyMate Walker. Things are going well and I feel the DonJoy knee braces are helping until my knees get stronger. I walk everyday and I feel I’m getting stronger. I don’t take breaks at all. Once I’m up walking I go right till the end of my physiotherapy session. They use to bring a wheel chair at the start in case I needed a rest but never used it at all. Now they don’t take it with me. Once I’m up I feel like I could walk forever.
Tomorrow is a start of a new week and there was talk last week about possibly getting me out of the SteadyMate Walker and into a regular walker. This here is a big step! I’m not sure right now as my knee has buckled in the past and I would have no support to catch me if they did. As much as I want to, little hesitant too. I can imagine most people are when it comes to this transition. I feel like I can but if my knee buckles even with the brace I’m going down. The thought is to try it in the gym first then go in hallways after a while. We’ll see what happens tomorrow and what my physiotherapist decides.
My discharge is coming up soon. It’s only 11 days away! My discharge date is April 10, 2020 but due to the statuary holiday I would be leaving on April 9th instead. There is a chance they’ll keep me longer with everything going on with the a Coronavirus pandemic going on but nothing mentioned as of yet. Some people think I’ll be staying but nothing said to me so far. I want to go home but I hope I stay to get where I need to be in my recovery from GBS before going back home. I haven’t accomplished my goals yet. When I first came here I said that when I leave here I’ll be walking out that door on my own two feet. More work to go before I’m there.
My house is not ready for me either. The two biggest things I need done are a ramp to get in my house and a stair lift. Not sure how that’s going to get done. I’ve decided that I’m going to be shutting down the Jamie Boyle GoFundMe page here soon. If people would still like to help towards getting me back home they still can if they want. With this Coronavirus pandemic going on and so many people out of work I don’t think it’s right for me to have it up. I haven’t shared it at all really since this pandemic got worse and a state of emergency was declared. To everyone, take care of your families and be safe.
New week tomorrow so we’ll see how my recovery from Guillain Barre Syndrome continues and maybe in a regular walker this week. I also ordered B12 supplements to help with nerve regeneration therefore perhaps helping towards my recovery from GBS. Always open to trying new things if it can have a chance at improving my recovery.