It’s been now 2 weeks in the hospital at the Dr. Georges L. Dumont since becoming ill with Guillain Barre Syndrome, day 14. Frank was my nurse today. I didn’t sleep much last night even with all the medications they give me.
Today they had to do another bronchoscopy this morning. I also had physiotherapy again which included lots of stretching and moving my arms and legs to prevent stiffness since I’m unable to move. When you go to a hospital you lose all dignity. I hate being paralyzed unable to do anything and therefore unable to care for myself. I had to have a rectal tube inserted for bowel movements today. What a life! I hate everything about being in the hospital. I hate what Guillain Barre Syndrome did to me.
Today, Rheal, one of the orderlies on duty gave me a shave. I can’t do anything, I don’t like this. I’m now therefore relying on everyone to care for me. This is something I’ll never get used to.
I continued to have a lot of burping again today. It feels like I’m chocking every time I do. I was also breathing on my own this evening for a bit. Certainly by far the hardest thing I’ve ever had to go through and learn to deal with.
No fever today. Lungs better and my parents massaged my hands and feet. I was very emotional, I just want to go home, I can’t stand being in this state in with no end in sight. Sue got a smile from me this evening. Sue told me she will be my night nurse and she’ll also be here all night. I replied, “I’m not going anywhere lol.” My parents said he hasn’t lost his sense of humour. I might not have lost my sense of humour but dealing with all of this has taken a toll on me. Guillain Barre literally flipped my life upside down and I have no choice but to deal with it. I’m just not sure I can do this.