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My GBS Story

Guillain Barre Syndrome Day 134 – SciFit Bike 8.2 Miles & Wheeling Myself In Wheelchair

Day 134 today I did a total of 8.2 miles on the bike, 2 miles this morning in 20 minutes and another 6.2 miles in 53 minutes this afternoon. I’m going to sleep good tonight with all the physio and OT today that includes leg exercises, arm exercises and all kinds of stretching. I’ve asked them to further increase schedule as I just got to get home. I am looking forward coming home for a few weeks at Christmas just unfortunately I have to come back after the new year.

Today was also the first day I was able wheel myself in the wheelchair in a long straight hallway. My arms and shoulders have been getting stronger and I decided to give it a try after supper to go back to my room and I did pretty good. Nurse lined me up and off I went…lol till I had to turn, lol when there’s a will there is a way! Glad more is coming back… 

The nurses here that take care me are beyond impressed with the progress they see on a daily and weekly basis. For me it seems slow but for them they see changes all the time. They always ask me what my goal is for today as I always have one. They like my drive I have.

The doctor came in this morning to check my mobility and progress and was happy to see how far I’ve come since coming here on October 1st. We are both aware how long this road to recovery will be as the nerves only heal at a rate of 1 mm a day. He asked me how tall i was and I said 6’4 and he said oh God, lol I bet you wish you were shorter right about now as it takes many millimeters to make up you’re a complete nerves system. Many more months to recovery but it’s coming one day at a time.

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