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My GBS Story

Plasma Exchange Treatment #2 In Saint John For Guillain Barre Syndrome

Well it’s another day for my plasma exchange treatment for Guillain Barre Syndrome up here in Saint John. I have to say the food up here at the hospital is a whole other story, wow! As expected I didn’t get much sleep here. I so miss my air mattress in Fredericton, I was in discomfort all night and had to be turned every hour. Hoping I can get an air mattress while I’m up here as that’s what I require for now or it’s going to be a long 5 days.

My parents came up to visit for the day while I’m up here getting my plasma exchange treatments. They were able to go in the room while I was getting my treatment. The treatment today didn’t take as long as it did the day before. The nurse was able to run the machine faster today. After the treatment was done my dad was able to hold the bag of discarded plasma from my blood. The bag itself wait about 10 pounds. The nurse put it on my chest so I could see for myself since I’m unable to use my hands and arms. I was really surprised how much that bag weighed.

My parents stayed for the day I took a picture of the central line they put in my neck so I could see. My neck was feeling pretty stiff today. Three more treatments then heading back to Fredericton.

Overall was a good day! We talked for a while and my parents were are able to see my progress so far. For supper I had chili and a sandwich from Tim Hortons thanks to my parents. Thank God as the food up here is pretty horrible. Another day done and round three tomorrow morning!

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