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My GBS Story

GBS Recovery Continues! Good News I’m Staying, Bad News I Fell Today In Physiotherapy

Well good news today, my GBS recovery continues and I’ll be staying here longer at The Stan Cassidy Rehabilitation Centre in Fredericton. They had their rounds today, every Tuesday morning, and my discharge date is now May 1st. Great news! I still haven’t finished what I started and I’m determined to get to the finish line. So it looks like I have 1 more month to work on my recovery from Guillain Barre Syndrome.

To be honest I wasn’t sure what the decision was going to be today. I was hoping to stay but after having a conversation with the doctor yesterday I wasn’t sure. He’s been after me to sell my house since I got here. I’m not selling my house. He had one of those conversations preparing me for home and what’s to come. Those difficult conversations. I’m not giving up so don’t you give up on me is what I’m thinking. I’ve come along way and I’m not done yet, I’m progressing still. Everyone is different and you can never compare one case of GBS to another.

Recovery From Guillain Barre Syndrome Is Different For Everyone

So many factors contribute to how people recover differently from GBS. For instance my friend that was here with GBS got treated in less then 12 hours while I wasn’t treated till day 3. Who’s going to have more nerve damage? It’s going to be longer to recover for me. Most recover from Guillain Barre Syndrome in between 6 months to 1 year. Some even longer. It’s been 8 months for me as of tomorrow. Guillain Barre Syndrome started for me on August 1, 2019. I know it’s going to be a year for me, I know it. I mentally prepared myself in Moncton. I’m not done yet, I’ll know when I’m done and it isn’t there yet. Guillain Barre Syndrome recovery time is different for everyone.

My First Fall Today In Physiotherapy

Now that the good news is out there I unfortunately had my first fall today. I had just finished doing my lap walking around the building in the SteadyMate Walker in Physiotherapy. I got back to the gym and I sat down in the wheelchair. They were getting my braces off and my sling when all of a sudden at the end the wheelchair tipped forward. I still don’t even know how that happened. Never had it tip before. It ended up projecting me forward out of the chair and onto the floor.

Luckily I didn’t get seriously hurt. My knees were quite sore when it happened as my feet were bent up touching my butt as I was leaning against the wall. My ankles were sore too. I’m still sore now but I’m okay. I’ll know more in the morning and how I feel when I wake up. I took some Tylenol, some Celebrex and iced my knees. I just hope that after sleeping tonight they don’t get all stiff and tight. We’ll see in the morning but for now I’m okay. My first fall in 8 months and I’m sure it won’t be my last. During your GBS recovery in rehab you have your successes and your failures. These things happen. I always thought when I fell it would be from a walker not falling out of a wheelchair. The regular walker is next week, that’s the one I’m worried about. If I fall it will be from my knee buckling. Hopefully it’s good. It hasn’t buckled in over a week and a half now I think.

My GBS recovery continues for another month! I’m happy my discharge date was extended. 🙂

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