Today my stomach was really bloated, I had abdominal pain and my stomach was distended. The doctors and nurses have been monitoring me and I’m waiting on a prescription. They would also like to see me in my wheelchair 1 to 2 times per day. I’m a little tired today and I needed more help with my breathing.
My mother spoke to Louise today about me feeling so abandoned in my new room. Last night I had phlegm and I felt like I was chocking and I couldn’t reach bell for help, I tried making a clicking sound with my mouth but no one came. I feel completely helpless. I didn’t sleep all night and I am tired today. The nurses have to do hourly checks all night but no one was coming. They might have a monitor in the nurses station with my vitals but I needed help. So frustrating being unable to communicate, call for help, I’m completely helpless, a scary feeling when you’re in need of something like chocking. I don’t like my new room as it’s too far away from nurses station, I can’t try and get someone’s attention if I wanted to. Guillain Barre Syndrome is awful in more ways then one.
Breathing good today with backup if needed. I was given a spray instead if ice chips now. No more popsicles or ice chips for me. Today I didn’t want to go in wheelchair, I didn’t want a shave either, I’m just too tired.
At 8:30 pm tonight I threw up twice. They are now going to do a stomach x-ray. Stomach bloated, I had abdominal pain, my belly distended and also hard as a rock. They did the X-ray and it showed no blockage, just air in stomach. I was almost crying from pain. My parents hated seeing me in so much pain. They had me on gravel for nausea and also gave medication for bloating . My Potassium is up and medication was given for that also.
Dr LeBlanc came in to check up on me this evening. He said too much talking and ice chips will give you bloating. Air also can’t be expelled cause of no body movements. They also did blood work this evening. They put him on my left side to help expel air… I thanked them twice for helping. I could sleep all night like this. First time laying on my side as I’ve been on my back the whole time.
My parents left at 10pm as I was very tired. It was also a rough evening . I was heavily medicated including serotonin . My parents are also going to start writing important things on the white board so nurses will know what I need to better able to communicate. A rough day, communication barrier is getting to me.