Categories
My GBS Story

Stair Lift For Home Might Be Partly Covered – Great News!!

I just received a phone call from Muscular Dystrophy about an application for a stair lift for my home that was put in months ago. It’s not approved yet but it looks good and the guy doesn’t see any reason it won’t be. They will cover $2,000 if approved for stair lift for home. Should know by next week. A little bit of hope… the lift costs $3,200 but if approved they’ll cover $2,000. Hoping for the best.

I still won’t have barrier free shower which is $6,900 which I really do need. No programs for that but he said he’ll work with me to see if any other organization can help.

To sum it up, Muscular Dystrophy may be helping, he did say funds low, donations low but I meet requirements but our own government in which we pay into, won’t help. Hoping to know more tomorrow as he was going to speak to supervisor to see if can speed up approval. We’ll see, hoping anyways….

Categories
My GBS Story

NB Housing Program Denies Home Wheelchair Accessibility Project To Bring Me Home

NB Housing Program denied the project to make my home wheel chair accessible in order for me to be able to go home. I am beyond frustrated with our government and I hope to god what I have been through others don’t have the same issues. For a system that we pay into and these programs are supposed to be for people to have help during their disability. It’s 328 days in hospital/rehab for me now.

NB Housing Program denied me of everything to get me home regardless of costs analysis and feasibility report from inspector. The project was doable. Now they are not being transparent and will not give me a detailed report of why denied. They beat around the bush so to speak with no details and facts. That is my home and the only thing they mentioned were two things, electrical panel and apparently water pipes from pressure tank going upstairs, wrong tubing supposedly. I already checked with electrician and no issues with panel at all. Tubing still checking on.

NB Housing Program Application Denied

I had a conference call with Rebecca from NB Housing Program and I did not get any report on reasons why not approved. I wanted a detail report to show me why where I’m living is not being approved so I can finally go home. She said it’s not their job to do so. Denying people by saying liability is vague, they should explain the reasons but won’t. It’s simple not to answer questions and that’s what their doing. They approve me then deny me.

Besides the electrical panel and water pipes I’m being told that where I live is not considered a dwelling or house. To explain this I used to supply pet stores across the maritimes and ship water plants across Canada and the United States. I don’t do this anymore and the bottom garage floor area was my office and business area. I lived upstairs and had this while I was in college taking business. Thé upstairs is the living area, kitchen, bathroom, living room, bedroom etc.. That is my home for now. They don’t consider it a home I guess.

The biggest thing is no transparency, no detailed report explaining denial. I’m beyond frustrated, today was a bad day. I’m just asking for a little help to get me home. What’s the point of having these programs if your not willing to help. Under the program I could have received $15,000 – $20,000 to get things done around the house to bring me home.

It’s frustrating, I paid into the system sinçe I was 16 years old. I’ve been let down so many times during this whole journey. The government has giving away so much money during this Covid-19 pandemic, which some people abused, which could work, or took advantage. I’ve been through a rough road with Guillain Barre Syndrome, where’s my help for these disability programs they speak of. I didn’t ask for this to happen to me it just did. I don’t know what else to say. Disappointed and frustration is an understatement at this point. I’m in disbelief that everything I’ve been through, there’s been more unnecessary challenges along the way. I don’t know what else to say…. There are things I need in order to come home.