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My GBS Story

Working Hard On Recovery From Guillain Barre Syndrome In Physiotherapy On SciFit Bike

Well it’s another week and I’m still working hard on my recovery from Guillain Barre Syndrome. Another day in physiotherapy on the SciFit bike. I’m on the hardest level, level 20, so hopefully in time my legs will be strong enough to stand up on my own. I can finish standing up when I’m about half way up but can’t do it all myself from the chair. That’s something I’m still working on, and may take some time to accomplish.

On the SciFit bike I’m working on Level 20 now and recently did 36 minutes for 5.48 miles. It’s a hard level but I feel my legs getting stronger as they work hard. Now I just got to keep working at it. The more biking, the stronger my legs should get.

Well tomorrow I find out what’s going on. This is a big week and not sure what’s going to happen. My discharge is this Friday but so many things up in the air right now for me to come home. Things are not ready for me and the last place I want to go is my home hospital. It’s day 313 for me in hospital/rehab. When I leave here I just want to go home. I’m hoping they will extend me for the last time till the end of the month. This will provide me a little more time to get things worked out for home.

This Covid-19 situation has caused delays in everything. I still need support workers at home for a while, that’s not lined up. I just need 2 more weeks really. I’ll find out tomorrow after their rounds but the possibility is there that I’m leaving this Friday. I have no control on their decision but I just don’t want to go back to hospital. I want to go home but just not back in hospital especially with this Covid situation going on. Really want to see my kids.

To be honest I don’t think I’ll be standing up on my own when I leave here. I really wanted to do this before I left but my rehab will have to continue from home. The day I do leave here I’m not getting wheeled out I’m using a walker and walking out on my own two feet. I’ll find out tomorrow when that will be, might be Friday. We’ll see!