Well today is now Day 301 since Guillain Barre Syndrome started back on August 1, 2019. What a long journey!! When I was in Moncton there was one doctor in particular Dr. Leblanc that stressed it’s going to take a long time to recover. I knew it myself back then as I did my research. I knew my road to recovery from GBS was going to be a long one. Most people get their walking back within 6 months, others 1 year. I mentally prepared myself as I knew it was going to be a year for me plus. It’s day 301 now, I’m not too far off a year now.
GBS Recovery Takes A Long Time
It’s been a long road to recovery from Guillain Barre Syndrome and it isn’t over yet. I honestly see myself working my butt off for another year really. That’s my opinion. Recovering from GBS is slow, especially with the severe case I had, but my determination has gotten me to where I am today with the help from everyone along the way.
My Discharge Date Few Weeks Away
My discharge date was May 29th, 2020, this coming Friday but that’s changed. I don’t have a date given to me other then I’m a few weeks from discharge now. It could be anytime now. Every Tuesday they have their rounds and it was determined I’m weeks away now. The doctor and nurse manager spoke with me yesterday and mentioned if things were not set up at home and might take a week longer that I’d go to my home hospital in the meantime. I told them that the day I leave here I’m going home, I’m not going to hospital, I’m done with hospitals now. I think over 300 days is enough. I’m going home.
Before I leave here however I’m hoping to accomplish standing up on my own unassisted from chair but we’ll see. My rehab will continue in my home everyday with gym equipment I have. If I don’t get there before my time is up here, I’ll get there from home. I’m making plans now so my rehab progress continues from home. No outpatient services yet with this Covid-19 situation ongoing.
The Day I Leave Here I’m Walking Out
I may have been wheeled in on a stretcher by ambulance back on October 1st but the day I leave here I’m walking out those front doors on my own two feet. I’m not going in a wheelchair to vehicle to come home, I’m walking out on my own two feet with a walker. That’s one request I have the day I leave here is I’m walking out on my own feet.
Guillain Barre Syndrome Recovery Far From Over
I’ve come a long way, still a long ways to go but hopefully in time, with effort, determination and focus I’ll get my life back. All we have is hope and as long as we have that anything is possible. Don’t ever let someone tell you, you can’t do something. Use that to feed your fire to prove them wrong. People can do anything if they put their mind to it and never gives up. I’ll never stop working on my recovery. I’ll never give up! People generally recover well from GBS and I hope I will too.
I’m Coming Home Soon!
I can’t wait to soon go home. It’s also crazy to think it’s been almost a full year of my life in a hospital/rehab. This nightmare I’ve experienced this past year is not over yet but I’m in a better place now in my recovery. GBS took me out quick but I’m slowly getting back up. In the next few weeks I’ll be back home and I can’t wait to see my kids. 🙂