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My GBS Story

GBS Recovery Working Hard On SciFit Bike & Walking In Physiotherapy Today!

Well today is just another day working hard on my recovery from GBS. Today is Day 275, and I’ve been in the hospital now for 9 months. It’s hard to believe. In Physiotherapy this morning I did some walking with the walker followed by cardio class on the SciFit bike. Every time I walk in Physiotherapy I walk farther each time within my 30 minute session. Today I walked 220 feet in total. I know I could walk more, I just run out of time. I feel I could walk forever once I’m up. My endurance is really good I fine.

Good Workout Today In Physiotherapy

After my walk I went on the SciFit bike and did 4.16 miles in 25 minutes on Level 15. The highest level I’ve been at but with basically perhaps 2 weeks left here I’m all in. I have to be able to stand up to a walker on my own out of the chair, so I’m increasing my leg strengthening program further. By the time I leave here this is something I need to be able to do and by darn I’m going to do what I came here to do.

It’s nice to know that my physiotherapist and I are on the same page. She wants me to be able to stand up to a walker on my own before I leave here. I want the same. I know my recovery is going to continue when I go home. I’m not going to be here forever and I want to go home but I need to be able to do this first. I hope that everything continues to improve, my legs get stronger and I can do this before my discharge on May 15th. If I don’t hit that date, I hope they give me the opportunity to get to this level of my recovery before I leave here. We’ll see when the time comes but until then I’m going to focus on more strengthening and recovery.

Walking Getting Better Each Time

As far as walking is going, it’s going good. I remember about not even a month ago when I started in walker I only went 30 feet. Then I think it was 50 feet, 120 feet, 180 feet and now 220 feet. My speed I think is improving, my confidence and overall it’s getting better. The more I do it the better I’ll get. Eventually if I get more time I want to make the complete loop around the gym and back. I need more distance and time now.

GBS Recovery Working Hard Towards Goals

On the SciFit bike I remember long time ago when I first got here at The Stan Cassidy Rehabilitation Centre in Fredericton I couldn’t do much on it. It was friggin hard let me tell you. I didn’t have much strength or movement. I could hardly push those petals down. Imagine only being able to do like 0.07 miles and taking a break at like 2 minutes to now doing 25 minutes straight on Level 15 and doing 4.16 miles. I’ve always liked numbers and tracking improvements to see exactly your progress you’re making. I’ve come a long way. It took a long time to get where I am today with the severity of my GBS but it’s coming. Hard work pays off and determination as well as the amazing staff helping you with your recovery. It takes a team to win!

Never Give Up!

I’ve been watching The Last Dance on Netflix lately of Michael Jordan. Amazing to watch really! I watched him play as I was growing up. Michael Jordan didn’t win a NBA Championship overnight. He had lots of failures along the way for his quest for the NBA title. He never gave up, fought hard and ended up winning 6 NBA Championships. With GBS, a persons recovery is not going to be overnight. If you put the work in, put your time in and are focused on getting the results you want anything is possible. It takes time and hard work though. Michael Jordan didn’t win by himself, it took a team effort. Mind you he probably won some games single handedly down the stretch of a game but a team effort.

If you’re going through GBS right now, put in the work, work with your team of professionals which will give you the best chance at beating GBS. I wish you all the best anyone going through this and best wishes in your recovery from Guillain Barre Syndrome. Remember these words, GBS recovery & Working Hard! They work together. 💪

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My GBS Story

Guillain Barre Syndrome Day 275 – Social Development Covering Some Equipment

After months & months of recovering from Guillain Barre Syndrome, I finally got some relief. Social Development has approved me to get a wheelchair, commode, shower transfer bench & shower bars. Finally!!! Some good news!! Some stress is off my shoulders wondering how this is all going to work out considering my discharge date is May 15th. Day 275 Guillain Barre Syndrome and something going my way for once. It’s a good day.
Today is officially 9 months now I’ve been in hospital/rehab. August 1, 2019 seems so long ago now.

This provides some relief off my shoulders but more things are still needed to get me home. Unfortunately the stair lift, ramp and small bathroom modification they won’t cover to get me home and make it wheelchair accessible for me. I’m definitely glad some of the stuff is covered as just the equipment alone is near $20,000. The stair lift is not covered and that’s $4,100 and the bathroom modification I’m not sure on cost as I’ve not been able to get an estimate yet.

I’m greatful for the help from social development for the equipment. Now I just need to figure out the rest as I only maybe have 14 days left here.

If anyone would like to help I do have a GoFundMe page. Any help and share would be greatly appreciated. Thank you! http://gf.me/u/xcvvzr