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My GBS Story

Guillain Barre Syndrome Recovery Working Hard – Walked 180 Feet With Walker

Well each day I continue to keep working hard on my recovery from Guillain Barre Syndrome. I continue to work out my legs on the SciFit bike, practicing standing up at the wall bars and more walking each day with walker. Today I walked 180 feet in the walker, that’s all the time allowed for, or my physiotherapy session. I feel stronger and I could have done the complete loop around the whole gym if I had more time.

Jamie Boyle Walking GBS Recovery Day 266 Guillain Barre Syndrome

Improving Week to Week

When I first went in the walker, I only walked maybe 30-40 feet. Each time I walked, I walked a little further. Now today I walked 180 feet!! I’m improving, it’s taken me a while to get here but I did. I walk a couple times in the parallel bars first to warm up my legs then I walk in the gym where the black lines are and out the gym door on the right. I walked all the way down to the cafeteria today. We’ll see how far I go tomorrow.

My discharge date is still set for May 15th after their weekly conference meetings today on patients. I also only have a few weeks left here maybe at the Stan Cassidy Rehabilitation Centre in Fredericton NB. I hope that within the next few weeks I’ll be able to stand up on my own from the wheelchair up to a walker. Most importantly I need to be at this phase of my recovery by the time I leave here.

I know my recovery will continue after I leave but I need to be at this point. This is and always has been one of my main goals here. I hope I can do it. I worked so hard to get to where I am today I don’t want set backs in recovery as mentioned before with no outpatient services being offered at home due to Covid-19. If I can stand, walk, I will be able to continue at home. I just need to get to this point.

I’m so close to my goal and I’m so close to maybe going home soon. I just got to finish what I started. If it wasn’t for all the staff here at The Stan Cassidy Rehabilitation Centre I wouldn’t be where I am today. Now I feel I’m on the home stretch and hopefully my strength and abilities will also continue to increase. Furthermore it’s now or never!! I choose now!!! Looking forward to the next 2 weeks.