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My GBS Story

Guillain Barre Syndrome Recovery Day 200 – Jamie Boyle Long Journey So Far

Day 200 as of today since this all began for me on August 1, 2019 with my recovery from Guillain Barre Syndrome, the day my life changed instantly. It’s crazy thinking about it. It’s been a long time… I’ve come a long way since being completely paralyzed head to toe. Thankful for all the progress I’ve made. Hoping my progress continues and I’ll be able to go back home April 10, 2020. That’s my discharge date as of now buy they always re-evaluate things so that can change. I’m going to work my butt off to hit that date or sooner. Even when I leave here I have many more months of rehab ahead but at least I’ll be home.

Guillain Barre Syndrome Recovery

It’s been a long time, and still a long road ahead but I’m continuing to get stronger. I’m feeding myself now, finally. My arms are getting better, more strength and endurance. My shoulders are strong and I’m wheeling myself in wheelchair all day which is building muscles and contributing to my arm strength. I still can’t grab anything with my fingers but there moving and coming so signal is getting there. My legs continue to get stronger and within the next 3 weeks or so they think I’ll be using the SteadyMate Walker. Things are coming a long but with Guillain Barre Syndrome recovery is slow but I’m getting better and that’s all that matters. Hopefully in the next 2 months I’ll be home, we’ll see but that sure would be nice. 🙂

I’m starting to see the finish line to reach home. Wish me luck! I’ll beat Guillain Barre Syndrome.