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My GBS Story

Guillain Barre Syndrome Recovery – A Long Difficult Journey Ahead

Today is day 118 and I realize how far I still have to go to reach my goals despite the progress I’ve been making week to week as I work towards my recovery from Guillain Barre Syndrome. They put me in the sling today between the parallel bars and I walked up and down three times each. Today was easier picking up my legs compared to last time. This is so hard and you can’t help but think am I ever going to get there. Am I ever going to walk again? There’s no question on my drive and determination but it’s just crazy how something can take you out in hours but yet can take six months to a year to recover from. This is by far the most difficult thing I’ve ever had to fight through.

Guillain Barre Syndrome Day 118 -What a long road so far and the journey isn’t even close to being over. GBS sucks!

Today it was kind of an eye opener as I know it will be sometime before I’m on my feet unsupported walking on my own again. I’m hopeful that one day I’ll get there and hopefully I’ll get there as fast as I can. To help further my recovery along from GBS I asked them if I could have the bike in my room at night to further increase my physio each day? Hopefully this will help speed up my recovery time. The physiotherapists and the occupational therapists at the Stan Cassidy Rehabilitation Centre here in Fredericton have been very accommodating to my requests for more therapies and session times. I’m here to work and by darn I’m going to give it everything I got. I know my recovery from Guillain Barre Syndrome wasn’t going to be a sprint but I am sure as hell going to try. Miss being home so much, this isn’t life. This is a long journey still ahead. GBS is something I wish no one ever has to go through and experience.