I sit here today disappointed, frustrated as this Guillain Barre Syndrome literally stole my life away from me. It’s Halloween and this is the first year I’m not going to be home taking the kids out trick or treating. I’m missing out on so much. I love taking the kids out as they enjoy it so much. My wife and I take them out every year. It’s something we’ve always done, I love seeing the smile’s and enjoyment they get from it. I want my life back, I want to see my kids again, I want my life back to normal.
I’m not only missing Halloween this year but I missed my sons birthday too. My son Caleb just turned nine a few days ago and I wasn’t there to celebrate with him. I know there’s many more memories and moments that I will be missing as a result of Guillain Barre Syndrome.
I stay in touch with my kids through Facebook video chat but I just wish I was there. It’s the best I can do for now but it’s not the same. I miss things so much, I miss giving the kids a hug and kiss every morning before going to school. I miss the times we spend together cuddled up in bed watching a movie and having some chips or playing a game. Guillain Barre Syndrome has taken away so much for me not just my health but my family.
I know Cheyenne is taking care of the kids, they’re happy doing their sports and activities, I just wish I was there too. I’m hoping I’ll be home by Christmas and I know it’s a long shot but I’m sure as hell going to try. I love Christmas and I want to be there for my kids. I’m hoping Guillain Barre doesn’t take that away too.