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My GBS Story

Heading To Saint John Hospital For Plasma Exchange Treatment

Well looks like I’m heading to the Saint John Hospital here soon for my plasma exchange treatment. My ambulance ride will be here soon by 5Pm. Everything is all packed up and ready to go. I’ve seen too many hospitals lately, hopefully this is the last one for a while. I’m looking forward to receiving my plasma exchange treatment now as perhaps this will help me get one step closer to recovering from Guillain Barre Syndrome.

View outside the window at the Saint John Regional Hospital where I will be getting my plasma exchange treatment.

Well I’ve just arrived at the Saint John Hospital. I can’t get over how big the hospital is. I’m glad to be here I just need to get used to new hospital, new nurses and used to hospital food again. The food while I was in Moncton was not bad it was pretty good actually. I only arrived here late so I missed supper so I looks like i’ll be getting Pizza Delight thanks to Cheyenne.

My pizza arrived and it was delicious I just wish that eventually i’ll be able to feed myself once again. It’s more enjoying when you can do it yourself. I’ve been getting fed now by someone else since September 17th, 2019 as I still don’t have the ability to use my hands and arms yet. I’m really hoping that this next treatment that begins tomorrow will help me recover faster from this horrible life-changing illness called Guillain Barre Syndrome.

I don’t think I’ll be getting much sleep tonight as they have me on the stroke floor here at the hospital. The buzzers have been going off nonstop since I’ve been here and my room is literally right outside the nurses station. All I hear are phone calls, buzzers going off, loud talking an non stop codes going off over the intercoms. This is a very busy floor… On top of this i’m laying here thinking about tomorrow when I start my first plasma exchange treatment. I’m really hoping that they can get this done using an IV line. I really don’t want to have another procedure done and get another PICC line put in. A PICC line called Peripherally inserted central catheter is thin, long, soft tube inserted into my arm that goes straight to the entrance to my heart. I really don’t want to get another one. I’m hoping they can find my veins tomorrow as all the nurses say I’m a hard poke. Besides thinking about this I’m thinking about this whole new treatment I’m about to go through. A person can’t help but be a little nervous to the unknown new procedure I’ve never done before.

Well i’m going to try to get some sleep now which I know will be a challenge. I’m kind of second-guessing my decision to get this done but I’m here now I can’t back out of it and I need to get better. I’m really hoping that tomorrow will help make my recovery from Guillain Barre Syndrome a little faster. Only time will tell.