Today I’m going to speak for the first time in 38 days when they install the speaking valve. It’s been so long since I spoke since Guillain Barre Syndrome all started. Joanie was my nurse again today. She’s a very caring, nice and such a thoughtful young lady. She told my parents they should do a Jamie Boyle GoFundMe page to help beat Guillain Barre Syndrome. She said it will help as he recovers from GBS as it’s a long road ahead of him.
Speaking First Time 38 Days
Balloon was deflated today, which is another good step. Dr Brideau and I gave my family a surprise today, with the speaking valve, he deflated the balloon and all of a sudden they hear me say “Hi Mom !! “ Wow! My family were surprised. The doctor and I had this planned for my family today. I was surprised to hear my own voice too. It’s been so long since I spoke. I was so happy to talk to my kids on cell phone today for the first time. A good and exciting day today!
Speaking Valve -Everyone Happy!
Rheal and the nurses were all excited to hear me talk, word spread quickly through ICU. It was like a party in my room today. My nurse Joanie told me I could use the F word today and laughed. 🙂 lol
My parents dad did some physio today on my hands, while Rheal did my feet, legs and arms.Also had ultra sound on right leg today which came back good. I sat in wheelchair for 1 hour today. The nurses and doctor told us as a reminder that the balloon has to be deflated to use speaking valve…which is very important. My parents stayed for 5 hrs today talking since it’s been a while.
My parents went home early this evening due to the storm. Hospital lost power at 7:10 pm …no clock, no tv, I found the time very long. I didn’t have anything I could do but at least I could now talk. Today was a good day!!! Speaking for the first time in 38 days with speaking valve was amazing. No more lip reading, no more communication issue and no more letter board. Now I can simply talk. 🙂 GREAT DAY!!!