Not stable today, lot of fluid was drained from my stomach today and had a kidney function test this morning, to see if I may need dialysis. I had a rough night. I get so HOT, especially after pain meds. I’m not breathing on my own today as well.
A specialist came in today for my stomach. With Guillain Barre Syndrome it can cause many issues. Blood pressure medications were given today to bring my blood pressure back up as it was 93 over 49. Antibiotics were also started again today as I might have an infection.
The psychiatrist came in to talk to me today. She asked about the kids visiting me. My wife and I decided together no, as it can be quite scary for kids seeing their father hooked up to so much medical equipment. When stuff starts getting removed and when I can talk, we’ll FaceTime to make sure they are okay first before visiting in person. She also mentioned that she is going to change sleep meds so I can sleep.
No feeding tube today, just IV. I started passing some air today which is good. I definitely don’t want any further issues. It was a busy day made me sleep after all the tests were done. Louise came in to see me but I was sleeping. The ICU doctor on duty came in at 4 pm and said my kidneys were looking better than yesterday. Kidney function test better, dialysis may not be required.The blood pressure medications brought my blood pressure up a bit, but don’t know where the infection is that I have. They may try feeding tube again tomorrow.
Psychiatrist came in again about medications and she noticed how I knew so much about my medications, my treatment and my interest in all of this. She seen how proactive I was with my health and well-being. She was very impressed, and mentioned how polite I was even going through all of this.
I joked with the nurse asking if the IV bag hanging had apple juice in it. You have no idea how desperately I wanted a drink lol. I had no temperature today. While my parents were gone for supper, the catheter plugged up, I woke up coughing and it sprayed everywhere. The catheter had to be changed.
I’m being positive about my next round of IVIG treatment. Hoping this will further help me towards my recovery from Guillain Barre Syndrome. I know for one thing I can’t wait to eat for the first time. I also did some breathing on my own this evening. My blood pressure was better 106 over 59 at 8:30 pm. My parents we left at 8:45 pm. It was a very long day and I’m all ready for the night.