My first night home, I have to say it was great. It’s nice to be home, different but nice to just be home. I met my care giver from Kindred Home Care yesterday as well as the manager and they are great!! Very nice and helpful. They had a chance to see my blog, videos and see how far I’ve come and gave them a good idea on what help I still need. I relaxed last night, did a few things but it was nice. Slept in my king size bed. 🙂
Now this morning, waking up to a new day, life came back quick, I received a call from social development. I was told before medical transportation to rehab and doctors appointments would be covered. I woke up to this call this morning informing I was denied, I don’t qualify. People pay into this, why qualify, if disabled, they should be entitled since in fact we all pay into the system. Our money is in there. I sat in bed and after the call, thinking, but nothing surprises me after everything I’ve gone through. I’m going to keep moving forward no matter what obstacles or extra challenges people throw at me. GBS didn’t take me down, the Government keeps throwing punches at me so to speak, but I’m still here. They are kicking me when I’m down but I’ll get through this. Just unfortunate that I’m going through this, how many others out there are going through the same thing. How many other stories of denials for a system we pay into and we all hope that in our time of need they’ll be there. That’s not the case.
I’m fortunate to be able to handle these things and take care of arrangements on my own but many people can’t. Many people don’t have their mind or abilities based on diagnosis to do things. These things I’m going through would be enough to break someone in their already low part of their lives and lack of support given by our Government. I just hope that if there are people going through difficult times they reach out to organizations that could perhaps help. If anyone is in Canada going through things, need someone to talk to, advice etc.. message me. I don’t know everything but some organizations I know of that may help. Just stay strong, no matter what your trying to beat as your diagnosis you’re still here fighting. Sometimes it takes time to work things out but my whole life no matter what challenges I faced, things have a way of working out. It might not be the easiest path but what I learned is that they do somehow all come together. Life can be tough but people can be tougher!!
Just another thing I’m going though. Just to come home from the Moncton Hospital was $82 accessible taxi ride one way. Now if I was to go to outpatient services twice a week that would be $328 a week, that’s not counting any doctors appointments. Medical transportation is a service our government has but I don’t qualify I guess.
It is what it is, I laugh now as nothing surprises me at all anymore. It isn’t funny at all but just not surprised for everything I’ve gone through.
I’m still here and I will someday beat GBS but my rehab now will continue at home and with my determination, and will along with my amazing care giver, I’ll beat this. When I do as someone told me, it will mean that much more as despite all the challenges and obstacles along the way I did it….. 💪
Anyone else going through GBS you stay strong!!!! We’ll beat this and if you need to talk, message me anytime. The first part of GBS is beating your mind, the rest comes in time with your recovery. You got this!!! 🙂